Rare Disease Day 1
2022 Health Trends
Opening Remarks
Tara Britt, Founder and President, Rare Disease Innovations Institute (RDII)
Dr. Raymond A. Huml, VP, Head Rare Disease Consortium, Syneos Health and Editor & Author, Rare Disease Drug Development: Clinical, Scientific, Patient and Caregiver Perspectives, from Springer Publishing
A Patient and Patient-Advocate Perspective
Meredith L. Huml, Chapter Director, North Carolina Chapter of the FSHD Society
Keynote: Physician Overview of Mental Health in the Rare Disease Community
Dr. Michelle Bailey, Senior Medical Director, Syneos Health
Keynote: Psychological Overview of Mental Health in the Rare Disease Community
Dr. Kathleen Bogart, Associate Professor of Psychology, Oregon State University
Panel Session: Mental Health and Age of Onset/Diagnosis in Rare Disease
Moderators:
Dr. Kathleen Bogart, Associate Professor of Psychology, Oregon State University
Keri McDonough, Head of the Patient Voice Consortium, Syneos Health
Patient Panelists:
Kate Bardwell, Principal, SSU Legal Contract Management Global Site Contracts Service Centre, Syneos Health
Meredith L. Huml, Chapter Director for the North Carolina Chapter of the FSHD Society
Dr. Chloe Labetoulle, Regulatory Affairs - CMC Global Regulatory Affairs Solutions (GRAS), Syneos Health
Hawken Miller, Features Writer and Columnist, BioNews
Kevin Schaefer, Associate Director of Community Content, BioNews Inc
Jessica Valence, VP Team Operations, GRYT Health
Closing Remarks
Tara Britt, Founder and President, Rare Disease Innovations Institute (RDII)
Dr. Raymond A. Huml, VP, Head Rare Disease Consortium, Syneos Health and Editor & Author, Rare Disease Drug Development: Clinical, Scientific, Patient and Caregiver Perspectives, from Springer Publishing
