le 29 octobre 2020


Father-daughter duo Ray and Meredith Huml team up with friends at the FSHD* Society to provide a “friends and family” view into the ways patients and advocates join hands with pharma to develop solutions.


  • Ray Huml, VP, Medical & Scientific Affairs and Rare Disease Consortium Lead, Syneos Health
  • Meredith Huml, Communications Assistant, Disability Rights NC, FSHD Patient
  • Mark Stone, CEO, FSHD Society
  • Jashmid Arjomand, PhD, Chief Science Officer, FSHD Society

*Facioscapulohumeral muscular dystrophy

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